I'm new to this forum, and to the HD community, though as an OT, I have worked with HD patients in the past.  I hope someone is still reading and some support might be here, as I desperately need it.

My husband has been demonstrating symptoms of agitation, mood swings, anger, difficulty concentrating and poor insight for a while.  He had not worked for a year, could not keep a job.  He's had muscle jerks and balance loss increasing over the last year, and especially when he would drink.  His behavior led to my seeking a restraining order against him because our arguments would at times turn physical.  He has spent time in jail.  We have been seperated since January.  The marital home is sold, and I've moved on to a new apartment with our children.

After some misdiagnoses...Generalized Anxiety Disorder, Tourettes syndrome, and at my insistance, we finally got him in to a Boston Medical's Movement Disorder Clinic.  Dr Frank saw him and has presumptively diagnosed him with HD.  Knowing his symptoms, his age of onset, I suspected HD.  My husband is adopted, so we had no idea of his genetic risk.  He has gone for the genetic test, and we return to the Dr on Sept 4 for the final result, but in my heart, I know he is correct.  God, why couldn't it have been a tumor!

Now I am faced with a decision of how to help this man who I have been seperated from for 8 months, what assistance can I offer while his behaviors that led to our marriage dissolving are still there?  I do not feel I can have him living with me until I have some expectation that his anger is in control, but his insight for this is very poor.  He feels as if I am turning my back on him.  If he cannot live with us as a family again, he wants nothing to do with us.  He is looking for an all or nothing level of help.  I just feel the need to keep him at a distance until I can get a grip.

I am also faced with raising our 2 children (5 and 6) with the character to be able to accept this risk in the future.

Fortunately, we are in an area with medical support, a center of excellence and a support group for networking.  I just cannot help but feel terribly guilty over my hesitation to welcome him into my home, and resuming our marriage as if nothing happened.