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Friday, November 21, 2008

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REACH OUT.  JOIN A SUPPORT GROUP .  HELP YOURSELF AND SOMEONE ELSE.

In a support group or with a counslor, people will not judge you or try to tell you what to do. They are there to listen and share feelings and experiences in a confidential setting.

You can click on "SUPPORT" on this site's home page to find a support group near you.  You may also contact the NE Center of Excellence to meet with the social worker for counseling If you do not live in New England go to the national HDSA website www.hdsa.org  to find the closest support group or Center of Excellence near you.   You DO NOT have to go this road alone. Support is all around you. 

     
  Community Discussions  At Risk  At Risk...
 At Risk
 
poisjill
1 posts
Joined
8/26/2008
At Risk
Posted: 26 Aug 08 3:36 PM
Hello, I have struggled with HD in my family since i was 10 when my mother was diagnosed. It crushed me but changed my life. I look at it this way having HD stinks and watching someone with it isnt any better. But we are all delt with cards in life and it is just how we play them that matter. I helped with the help of my family to keep my mother home through her entire time with HD and we did it. It was a blessing to learn and see how things effect people and you say that wont happen to me. Well, my mother past away this january and it stunk I miss her so much but i pushed through and tried to still move on no matter what i felt it wasnt about me i didnt die. but what i didnt realize is that i was greatly afftected by my mother dying and just feel apart and broke down. I embarressed myself. I am a strong willed person who think she can do anything if i put my mind to it. but somethings I need to let happen. I am rambling on but what the challenges we face with a disease like HD to battle is very horifying. I am too at risk of HD and my brother was diagnosed with it and the rest of them are at risk as well. One day at time is what i am trying to do. but if any one has any suggestions on how to move on from losing someone with HD then knowing that you may have to watch it over and over again with everyone you love? Thanks for listening JILL
HeatherDugdale
2 posts
Joined
2/14/2008
Re: At Risk
Posted: 24 Oct 08 4:35 PM
Hey...I am Heather. I have HD. I was that same age as you when my Mom found out she had it.She died when I was 17. I loved her so much. I worked in the nursing home to look after her. It takes a blow. No one thought I would graduate. I did not give a crap and fell apart. I still miss her. There is nothing that can take her back. Your Mom would want you to move on with your life. Live life for her. A parent never wants there kid to just stop. Live for your Mom. As far as the scared part goes. Check out my postive HD website. I put a tribute to my Mom on there. http://heatherdugdale.angelfire.com/
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