I have 3 daughters, 2 with HD aged 39 and 36.  I am conservator for my eldest who lives with me and is in the process of getting divorced. Just about everthing that could go wrong is going wrong in their families. Spouses who have not been supportive, children who are failing in school, and of course the ever present all encompassing HD symptoms.  My non HD daughter and I run a support group and we are active in the HD community, constantly educating ourselves and keeping up with new research, etc. But it's the day to day dramas that are exhausting. Also, observing the slow march of the symptoms in my beloved girls is excruciating. My youngest seems to be getting chorea much more than her older sister who has cognitive issues. When I look at her I see her dad all over again. He died at age 41 when my girls were in their early teens and his chorea was quite bad. Everyone says how strong I am but really, I am beginning to feel very old. I remarried 15 years ago and my husband is a rock, always supportive and willing to help. I look at my eldest granddaughter who just turned 15 and I wonder....does she have it? She has the same issues her mother had when she was a teen. It's just too much to cope with sometimes. Right now my daughter is playing cards on the computer, listening to music on her headphones, and singing along at the top of her voice. At least my husband and I can laugh about it and even make jokes. That sounds very sick but we find it gets us through the times you want to give that primal scream that is supposed to be good for you.

Just had a few really bad days in a row and needed to sound off.

Aud.

Hi Aud

I know how you feel My wife Raima and I have a lot of bad days tring to cope with all that has happened with our two boys with HD. and it is not getting easier with high gas food and Taxes we are having a hard time keeping our Bills paid not sure how we will make it another year we did manage to get a bill passed last year LD 339 now they won't send our loved ones out of state anymore. It seems to me like we should be able to get a low Fed intrest rate loan seeing how we saved our state approx $ 25 million a year in Tax payer dollars.

Thanks for Listening

Mike