An Approach to Analyze, Avoid Problems - Monday, November 07, 2005
If you have Huntington’s Disease [HD], this darn disease will challenge you. In fact, you may need help from your family or other folks. It takes a team to fight HD with you. I am often awed at how well those with HD and their teams come up with clever ideas. Then they use them to manage or prevent problems by anticipating and avoiding them.
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Deciding When the Time Has Come for Nursing Home Placement - Friday, August 19, 2005
Deciding when the needs of a person with Huntington’s disease can no longer be provided for at home can be extremely difficult for families and medical professionals alike. There are no truly hard and fast rules, as each person and family with HD is unique. read more...

Smoker’s Vest - Monday, August 15, 2005
Nursing homes having been using smoking aprons for years now to protect residents from burning themselves. God, they're ugly, de-dignifying and cumbersome. I met a family in Maine that used a welder's apron that was heavier and fit better. Following their lead, I went looking for a welder's apron. read more...

Choosing an American Nursing Home - Monday, August 15, 2005
Choosing an American Nursing Home for Families Touched by Huntington’s Disease - I am grateful for my experience in American nursing homes to my late aunt, Dorothy “Dolly” Guilfoyle, who owned and ran The Dineen Home in Lower Mills for many years before her untimely passing. I’m grateful for this opportunity to share these contemplation’s with you and I do pray that you may find one or two of them to be helpful. read more...

Broada Chairs - Monday, August 15, 2005
I have no medical training. I am not a physical therapist. But I do know that many, many folks with HD "love" their BRODA chairs. I also know a handful of families who have purchased BRODA chairs at their own expense and swear by them. read more...

Beatles Caregiver’s Songbook - Monday, August 15, 2005
Some songs have a special meaning in certain circumstances. Some folks find that listening to them closely or singing them can relieve stress or make you feel better. Some songs can help you see things differently or even inspire hope. read more...

Routine in Huntington’s Disease - Monday, August 15, 2005
If you have Huntington's Disease (HD), this was written for you. But you don't need to read it. Our aim is to help your helpers arrange your home, the time that you spend together and how they go about helping you. Hopefully this will make both your life and their life a bit easier. read more...

Thickeners - Monday, August 15, 2005
If one has difficulty swallowing, this product in a number of brands is liberating. It seems that once you have an episode of choking, it's difficult to shake the fear of choking again. read more...